Three Alzheimer’s Books I Have Read
This is the hardest thing I’ve ever done in my life, being a caregiver for my wife who has Alzheimer’s, caring for her every need, doing the family business, which includes taking care of all the medical expenses and prescriptions etc., and raising a 13 year-old granddaughter.
(As I write this, there was a sleepover in my house after a full day pool partying for three 13 year-old teenagers, everyone is sleeping now, its 11am!)
But, I think I’m holding up well, next week I’ll see my primary care physician and discuss some issues with him.
The whole Alzheimer’s thing begins with a diagnosis, and your reaction is, “this is BS!” following with tears and then hell, “It’s not going to stop us!” to a couple years later, “Well maybe things are kind of getting worse” to after about 3 years, “I think I should be planning for the future.”
So I wanted to pass along to anyone who is facing caregiving the 3 books I have read so far about Alzheimer’s.
“Fighting Alzheimer’s A Simple Plan” by Ron Jackson.
The author gives a narrative, an almost journal like description of caring for his wife. It’s good.
“Loving Someone Who Has Dementia: How to Find Hope while Coping with Stress and Grief” by Pauline Boss.
It is with this book I learned about the concept of “Ambiguous Loss.” This means you have lost your loved one, who is no longer the person you married, but is still present in physical form or body. How to deal with this. This is a powerful book every caregiver should read.
But more than anything I’ve read so far, this book “My Life Rearranged: Musings of an Alzheimer Caregiver.” by Susan G. Miller
This is the best, the most poignant, the most descriptive, and the most emotional narrative I have read. Just about everything she says in her book, every experience and every thought is what I have gone through so far. She takes you from the beginning stages of the disease, to the middle, to the final stages, as a narrative caring for her husband, but ends each chapter with the thoughts rushing through her mind as she tried to manage and cope with her responsibilities and love for her husband. It is truly moving. If you’re a caregiver please read this book.